The report that must be read

9th January, 2012 2:18 pm

I feel I have a responsibility to write today about “Responsible Reform”, the report into Disability Allowance Reform which been
written, researched and funded by disabled people.

That’s because I used to receive Disability Living Allowance (DLA) when I first came out of hospital, in a wheelchair, after having my
neurological system wrecked by POEMS syndrome, a rare nerve-disorder caused by antibodies generated by a bone marrow cancer. DLA is not means-tested so you can get it while you are working – instead your level of need is measured relating to care needs and mobility needs. The idea is that it helps cover the additional cost of living involved in having a disability, such as paying for transport when you can’t walk to places you need to get to.

I was lucky on two counts (perhaps an unusual way to describe the aftermath of getting a life-threatening cancer aged 37). I got the
funding I needed. And I gradually – over a period of 2 and a half years to date – recovered my mobility thanks partly to great NHS
physiotherapy but mainly due to the nature of the condition – once radiotherapy had zapped the tumour, my nervous system gradually repaired itself at a steady rate of 1mm a day.

My mobility isn’t back to 100% yet – I still wear orthotic supports as my ankles are weak, and walk outdoors with a stick – but I don’t now need and would no longer qualify for DLA.

But I am worried that proposed reforms will put others finding themselves in the situation I did, most of whose conditions aren’t
reversible like mine was, in risk of hardship.

The report finds that the Government’s response to the DLA consultation “presented a highly misleading view of the responses it
received”. Overall,

•       74% of respondents were against the proposals for Personal Independence Payments (PIP);
•       19% had mixed views; and
•       Only 7% supported it fully.

Worse, “the consultation process did not meet the Government’s own Code of Practice on consultation. It was two weeks shorter than
recommended and took place over the Christmas holidays. Crucially, the Welfare Reform Bill was presented to Parliament two days before the consultation ended, meaning that responses could not be taken into account when drafting legislation for Personal Independence Payments (PIP)”.

The Government claims that there has been a 30% rise in DLA claims but their own more recent figures say it is only 13%.

The report concludes that “DLA is already a cost-saving benefit. Cuts to DLA cannot cut disability, they simply shift the costs elsewhere. One in three disabled people already live in poverty and many feel proposals for PIP can only see this increase.”

It says:

“Overwhelmingly, we found that disabled people do not agree that there is a need for an entirely new benefit (PIP). It was clear that whilst disabled people do support some reform of DLA (they make many suggestions in this report) they do not want a new benefit. They believe it is a costly irrelevance during times of austerity. Disabled people are clear and emphatic – keep DLA and reform the existing benefit.”

The report is an excellent piece of research and advocacy. The disabled activists who produced it deserve great praise for their
thorough work.

I would urge everyone to read it and support disabled people in calling for a pause to Personal Independence Payments in light of this
new research. Please post links to the research and related news on Facebook and Twitter with the message “I support the #spartacusreport” between 10am-6pm today (Monday 9 January).

Update: For those who can’t get a copy of the report, it’s available here.

To report anything from the comment section, please e-mail [email protected]
  • Duncan

    An excellent piece of work.  Thanks for sharing it here, Luke.

  • Guest

    Has  the government put a D notice on the BBC amd media covering this?  Something here stinks.

  • Thanks Luke. I think there is a lot of misunderstanding about DLA and that changes are being proposed for the wrong reasons

    • Anonymous

      Sadly, of course both Blair and Brown did not think DLA was worth the price paid, Brown wanted it all stopped, then he stated  people over retirement should not have it, then he went after people in care, mostly young people who’s  only benefit was Mobility.

      But sadly all parties are out to make cuts to pay off the deficit and boy are the sick and the disabled paying the price.

  • Anonymous

    Poeple who  are seriously, even dangerously ill, have enough to contend with already, they should  certainly not have additional worries about receiving the welfare benefits they need, but I have to remind you Luke, it was that  great “Labour” figure James Purnell, in collusion with the “Labour” (now Tory) welfare “expert” David Freud who wanted DLA done away with in favour of ESA.

    It might be the Coalition who put the plans through, but it was Purnell who commissioned that report in the first place.

    I wish you well in your recovery.

    • Anonymous

      Shame mind you it was labour that allowed the bankers to get away with blue Murder, and labour that tried to attack the sick and the disabled under the guise of  work shy.

      While Brown now lives in Scotland doing nothing while being paid a wage for not turning up in his work place, you cannot make it up.

  • Anonymous

    Thankyou for sharing your experiences Luke, and hilighting such an important issue.

    As Mike H says, a lot of misunderstanding over changes, and questionable motivation
    behind it?

    I admire your courage and tenacity in campaiging and working for the party
    enormously, and I think you are an excellent spokesman for other people
    with specific needs and disabilities, as well as a great writer!

    I also wish you great luck with your steady recovery,
    and good luck with the campaign.

    Best wishes, Jo.

  • Very clear and informative. Thank you!

  • Anonymous

    There is an ePetition available asking the govt to pause the move to PIP, you can add your name to it here: http://epetitions.direct.gov.uk/petitions/20968

  • Anonymous

    We are just about one trillion pounds in debt at the moment. 

    I am sorry to hear about your misfortune, Luke, and I am glad to hear that you are slowly recovering. It is very young to be struck down.

    Now let me tell you about my own hernia scare……..

Latest

  • Comment Featured Steel crisis and Chinese dumping shows why we need a truly ethical foreign policy

    Steel crisis and Chinese dumping shows why we need a truly ethical foreign policy

      While Carwyn Jones, Welsh First Minister, has travelled to India to ensure the board of Tata consider the implications of the sale of Port Talbot steelworks, Angela Eagle has called for China to be refused “market economy status”. This is an important statement. It indicates the party is changing policy. We need a new consensus on international trade.   In 1930, President Herbert Hoover signed into law the Smoot–Hawley Tariff Act which imposed a 50 per cent tax on […]

    Read more →
  • Featured News Corbyn and Kinnock demand more help for “traumatised” steel industry after Tata board reaches impasse

    Corbyn and Kinnock demand more help for “traumatised” steel industry after Tata board reaches impasse

    Labour MPs including Jeremy Corbyn are piling pressure on the Tories to do more to help the struggling steel industry after a crunch meeting of the Tata board broke up without a shortlist of bidders for its UK operations being agreed. Tata Steel had been expected to publish the shortlist after its meeting in Mumbai today but the firm said only that several bids were under “active consideration”. The uncertainty continues as hundreds of British steelworkers represented by Community, Unite […]

    Read more →
  • Comment Featured PMQs Verdict: Osborne falters, Eagle soars and Trident lurks in the background

    PMQs Verdict: Osborne falters, Eagle soars and Trident lurks in the background

    Those in the Commons chamber today were slightly taken aback by the wall of noise that greeted Angela Eagle as she stood up to the despatch box this afternoon. It is unusual these days to see Labour MPs in such vocal spirit, and they seemed to be making up for lost time with extra volume. As much as the absence of Corbyn could account for this (the Labour leader does not encourage noise from his backbenchers, and it is not […]

    Read more →
  • Comment Featured Dan Jarvis: As a former soldier I back the EU as a project for peace

    Dan Jarvis: As a former soldier I back the EU as a project for peace

    This is a speech entitled The patriotic choice for a more secure Britain delivered by Dan Jarvis at the Royal British Legion in Mitcham, south London, today. I want to begin by thanking Siobhain [McDonagh] for her welcome. Since 1997 she has served as MP for Mitcham and Morden, working tirelessly for her constituents and it’s a great pleasure to be in her constituency today. I would also like to thank Ross Kemp for his kind introduction. We are particularly grateful that today […]

    Read more →
  • Europe Featured News McDonnell seizes on IFS report to warn Brexit would spell “disaster” of more austerity

    McDonnell seizes on IFS report to warn Brexit would spell “disaster” of more austerity

    A vote to leave the EU would be a “disaster”, John McDonnell has said today as the independent Institute for Fiscal Studies (IFS) warns that Brexit would lead to two more years of austerity. A report published today by Britain’s leading tax and spending think tank says that leaving the EU would cost the country between £20 billion and £40 billion in 2019/20, as the UK’s economic growth falls. McDonnell, the shadow Chancellor, said such losses would be the inevitable […]

    Read more →
x

LabourList Daily Email

Everything Labour. Every weekday morning

Share with your friends










Submit